In the media


The Maddi Foundation in desperate bid to raise £2m

The Maddi Foundation have made an urgent appeal to help raise £2 million in the hopes of finding a cure for Maddi’s rare type of motor neurone disease, SPG15


Mum’s heartbreak as daughter, 18, is first in UK to be diagnosed with SPG15

Carina Thurgood speaks to the Birmingham Mail about her daughter Maddi’s horrific condition Spastic Paraplegia Type 15 (SPG15)


Braintree mum’s urgent appeal to save daughter

Essex Live interview with Carina Thurgood speaking about Maddi’s struggles living with SPG15 every day


It’s a race against time to help Maddi

Carina says she won’t give up fighting to find a cure for her daughter’s devastating rare illness Spastic Paraplegia Type 15


Rare Revolution – The Power of One

Carina Thurgood interview with Rare Revolution about the power of a patient group with one


ITV News interview

Maddi speaking on ITV News about her journey with Hereditary Spastic Paraplegia 15 – SPG15


BBC News coverage

Maddi shares her experience of living with SPG15


Maddi Foundation ball sees an amazing turn out

Essex Life magazine feature on the Maddi Foundation ball


Three Peaks Challenge for Maddi

Phoenix98 FM interview Alex Thurgood and Victoria Copeland who are taking part in the Three Peaks Challenge


Time is running out for Maddi

Carina Thurgood talks to Woman’s Own magazine about finding a cure for Maddi’s rare disease


BBC Radio Essex Interview

Maddi Foundation CEO, Carina Thurgood and daughter Maddi talk to BBC Radio Essex


Vicki Michelle talks to The Maddi Foundation

Phoenix98 FM host Vicki Michelle interviews Maddi, Carina and Paul from The Maddi Foundation


Gene therapy for Saffron Walden school pupil could help others around the world

Scientists at Sheffield University are developing a therapy especially for Maddi Thurgood, a pupil at Saffron Walden County High with a rare form of motor neurone disease.


Repositive explore literature on SPG15 mechanisms

Richard Shaw explores what current literature has to say about SPG15


100k needed to to help find cure for Maddi

100k needed to help find cure for Ongar teen Madd’s rare disease