University of Sheffield receives a Royal Recognition

University of Sheffield receives a Royal Recognition

The University of Sheffield has been awarded the Queen’s Anniversary Prize for innovation in neuroscience
The prize is the highest national honour that recognises outstanding work by UK universities and colleges that demonstrate quality and innovation in their research
Sheffield has been recognised for improving patient outcomes for people living with neurodegenerative diseases such as Parkinson’s Disease and Motor Neurone Disease

read more
Epping Forest Guardian

Epping Forest Guardian

A teenager is in a race against time to raise cash to help scientists find a cure for her rare disorder.
Maddi Thurgood, 15, from Ongar, is thought to be the only person in the UK and one of just 20 worldwide suffering from SPG15 (Spastic Paraplegia Gene 15).
The condition, a type of motor neuron disease, causes paralysis of the limbs, affects vision and hearing and can also cause juvenile Parkinson’s.
Maddi’s family have been contacted by the Gene Therapy Research team at the Sheffield Institute for Translational Neuroscience, one of the world leaders in this area of research.

read more

Repositive

Back in July, one of our users told us about Maddi Thurgood, a 16-year-old girl diagnosed with SPG15, and asked if we knew of any relevant data or contacts. SPG15 is a neurodegenerative disorder within the category of Hereditary Spastic Paraplegias.

read more
Daily Mail

Daily Mail

A teenager is in a ‘cruel race against time’ to find a cure for her rare motor neuron disease before it’s too late.
Maddi Thurgood, 16, from Ongar, Essex, is believed to be the only person in Great Britain, and one of only 20 people in the world, to have Spastic Paraplegia Gene 15 (SPG15).

read more