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Registry and Natural History Study for SPG15 at Boston Childrens Hospital - The Maddi Foundation

Registry and Natural History Study for AP-4 and SPG15 patients

Dr Darius Ebrahimi-Fakhari from Boston Childrens Hospital is conducting a Registry and Natural History Study for SPG15.  He is taking International patients and if you would like your family members to take part in the study please contact Dr Ebrahimi-Fakhari via

Email to Catherine.Jordan@childrens.harvard.edu

Telephone Number 001 617-919-1476

Please click on the link below to read the information regarding the AP-4 study which is applicable to SPG15. `

Registry and Natural History Study for AP-4 and SPG15