In the media

The Maddi Foundation have made an urgent appeal to help raise £2 million in the hopes of finding a cure for Maddi’s rare type of motor neurone disease, SPG15

Carina Thurgood speaks to the Birmingham Mail about her daughter Maddi’s horrific condition Spastic Paraplegia Type 15 (SPG15)

Essex Live interview with Carina Thurgood speaking about Maddi’s struggles living with SPG15 every day

Carina says she won’t give up fighting to find a cure for her daughter’s devastating rare illness Spastic Paraplegia Type 15

Carina Thurgood interview with Rare Revolution about the power of a patient group with one

Maddi speaking on ITV News about her journey with Hereditary Spastic Paraplegia 15 – SPG15

Maddi shares her experience of living with SPG15

Essex Life magazine feature on the Maddi Foundation ball

Phoenix98 FM interview Alex Thurgood and Victoria Copeland who are taking part in the Three Peaks Challenge

Carina Thurgood talks to Woman’s Own magazine about finding a cure for Maddi’s rare disease

Maddi Foundation CEO, Carina Thurgood and daughter Maddi talk to BBC Radio Essex

Phoenix98 FM host Vicki Michelle interviews Maddi, Carina and Paul from The Maddi Foundation

Scientists at Sheffield University are developing a therapy especially for Maddi Thurgood, a pupil at Saffron Walden County High with a rare form of motor neurone disease.

Richard Shaw explores what current literature has to say about SPG15

100k needed to help find cure for Ongar teen Madd’s rare disease