In the media

The 3 Peaks Challenge for Maddi

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Time is running out for my Maddi

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BBC Radio Essex interview

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Vicki Michelle’s Music Mix – show 6: Patti Boulaye, the Maddi Foundation and Louise Michelle

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£100k needed to help find cure for Ongar teen Maddi Thurgood's rare disease

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Exploring the literature on SPG15 mechanisms

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Gene therapy for Saffron Walden school pupil could help other children around the world

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Teenage girl who is the ONLY person in the UK with rare motor neurone disease is in 'cruel race against time' to find a cure before it's too late

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ITV News coverage

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