The Maddi Foundation and Dr Jennifer Hirst holding our first international meeting at Cambridge Institute of Medical Research to discuss a plan of action for further research on SPG15 and also SPG11 which is very similar. We had many of the greatest minds attend who travelled from London, Sheffield, Cambridge, France, Germany and Italy. Thank you to all the Professors, Clinicians and Scientists who joined this very productive meeting.
What an amazing night for The Maddi Foundation Ball! Thank you so much to all those that attended and donated to our raffle and auction, we really hope you had a brilliant time! We would also like to give a big thank you to the following main sponsors Acorn Insurance, Motorcade Insurance and Tish Press Accountants
Thanks to our lovely host for the evening Vicki Michelle and our very talented entertainer Wayne Woodward
Special thanks goes to Nickel Holdings/Cedar Park Nursery, CL Classics, Juice Promo, Lovelight Entertainment, Down Hall Hotel, Charity Fundraising Auctions, HNE Media, Restless, TEC, The Somerset Wine Company, Toppesfield Wine, P&A Woods, Jane And Matthew Clark, Toppesfield Vineyard, Chelsea football Foundation, Manchester United, Disney Theatrical Productions, Treasured Moments Photography, Paul Arnold, Jennifer M Hair, Nick Brown Essex Magician, Hotel Casa Jardin, Tom Ryder (Guitarist), Rose Garden Florist, Snug Cafe, Vojan, Caroline Burchell, Serendipity Cakes.
Tow Wahlig Stiftung symposium 2018 in Berlin
The Maddi Foundation is a non profit charity which was founded by the family of a young teenage girl “Maddi” who in 2016 was diagnosed and started battling SPG15, a degenerative neuro disease, for which to date there is no cure or treatment! The Charity aims to continue to support medical research to help cure this disease and other similar rare diseases. Conditions this rare receive very little attention and funding.
This is where you come in
A 100% of your donations and contributions go directly towards funding the science necessary to advance towards clinical trials.
What is Spastic Paraplegia Gene 15?
SPG15 is classified as a type of motor neuron disease and is a very rare neurodegenerative illness. Onset generally occurs in childhood or adolescence where the first symptom often starts as leg stiffness. It is knowing to cause paralysis in the lower and upper limbs with neurological impairment causing abnormalities in the brain. In addition, it affects the peripheral nervous system impairing vision and hearing it can also bring on early juvenile parkinsonism. The disease is progressive and has devastating effects of Motor Neuron Disease.
More info on SPG15
Every penny counts. Your generosity will fund vital research and treatment efforts in the hope of not only stopping progression of SPG15 but also finding a cure. This will open the doors hopefully to help other similar orphan diseases. Donate to be part of a cure.